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Newswise: Epilepsy Comorbidities Are Present Before Diagnosis: Research Recap with Remy Pugh and Dr. Chris Tailby
Released: 22-Nov-2024 11:55 AM EST
Epilepsy Comorbidities Are Present Before Diagnosis: Research Recap with Remy Pugh and Dr. Chris Tailby
International League Against Epilepsy

Some people with epilepsy also experience memory and learning issues, as well as depression or anxiety. A study in Australia screened people for these conditions at a seizure clinic, before anti-seizure medications had been prescribed. Compared with the control group, the people at the first seizure clinic had higher rates of cognitive and neuropsychological issues.

Newswise: Consensus Recommendations on Navigating Epilepsy with Eyelid Myoclonia (Jeavons Syndrome)
Released: 22-Nov-2024 11:45 AM EST
Consensus Recommendations on Navigating Epilepsy with Eyelid Myoclonia (Jeavons Syndrome)
International League Against Epilepsy

Epilepsy with eyelid myoclonia is a generalized epilepsy syndrome characterized by eye-closure-induced seizures or changes on the EEG, eyelid myoclonia--jerks of the eyelids and eye-rolling--with or without absence seizures, and photosensitivity. It appears predominantly in females and usually starts between the ages of 3 and 12.

Newswise: Epilepsy Training Courses Improve Non-Specialist Care. They Also Can Spur National Change.
Released: 11-Nov-2024 11:10 AM EST
Epilepsy Training Courses Improve Non-Specialist Care. They Also Can Spur National Change.
International League Against Epilepsy

Continuing education of non-specialists is crucial for improving and enhancing epilepsy diagnosis and treatment. Many countries lack enough specialists to care for people with epilepsy. Even in high-income countries, a significant percentage of people with epilepsy receive care from a non-specialist.

Newswise: Transición a la atención de adultos en epilepsia: Cerrar la brecha
Released: 11-Nov-2024 10:00 AM EST
Transición a la atención de adultos en epilepsia: Cerrar la brecha
International League Against Epilepsy

Para los adolescentes que son atendidos por personal médico pediátrico por fuera de un centro integral de epilepsia, el cambio de la atención de la epilepsia en un centro de adultos puede ser abrumador, tanto desde el punto de vista organizacional como personal. Después de años de ser observadores pasivos, se espera que los adolescentes asuman la responsabilidad de muchos aspectos de su propia atención médica.

Newswise: Deux régions de l'ILAE collaborent à une série de webinaires ayant un impact professionnel
Released: 4-Nov-2024 2:05 PM EST
Deux régions de l'ILAE collaborent à une série de webinaires ayant un impact professionnel
International League Against Epilepsy

Certains aspects de la pandémie de COVID-19 ont été de courte durée, comme les confinements et la distanciation sociale. Les webinaires ILAE, en revanche, ont non seulement persisté depuis 2020, mais sont aussi devenus plus fréquents.

Newswise: Reflections on the Life and Career of Dr. Juhn Wada (1924-2023)
Released: 4-Nov-2024 1:55 PM EST
Reflections on the Life and Career of Dr. Juhn Wada (1924-2023)
International League Against Epilepsy

Juhn Atsushi Wada was a Japanese–Canadian neurologist known for research on epilepsy and brain asymmetry, including the development of the Wada test to assess hemispheric dominance of language function. He became a pioneer in the utilization of the kindling model of epilepsy, which permitted controlled studies of the development of epilepsy in the laboratory.

Newswise: image.php?image=%2Fimages%2Fuploads%2F2024%2F10%2F17%2F67112c46ac894_SharpWavesx2160x2160.png&width=502&height=334
Released: 16-Oct-2024 11:50 AM EDT
From Epilepsy Patient to Epilepsy Surgeon: Dr. Ashok Pillai
International League Against Epilepsy

Dr. Ashok Pillai is a professor of neurosurgery and neuroscience; his personal experience with epilepsy led him to train as an epilepsy surgeon and has shaped his perspectives on patient care, including tapering of anti-seizure medications after surgery.

Newswise: Seizure Action Plans as Educational Tools in Epilepsy: Dr. Lucretia Long
Released: 15-Oct-2024 8:40 AM EDT
Seizure Action Plans as Educational Tools in Epilepsy: Dr. Lucretia Long
International League Against Epilepsy

Seizure action plans often are aimed at a subset of people with epilepsy, particularly children. Dr. Lucretia Long discusses how these plans can be used to engage and educate people with epilepsy, their families, and the larger community.

Newswise: Dos Regiones De ILAE Colaboran en Una Exitosa Serie De Seminarios Web Con Impacto Profesional
Released: 14-Oct-2024 12:10 PM EDT
Dos Regiones De ILAE Colaboran en Una Exitosa Serie De Seminarios Web Con Impacto Profesional
International League Against Epilepsy

Los seminarios web cooperativos se lanzaron en junio de 2021 en dos idiomas: francés e inglés. Los beneficios de la empresa cooperativa se extendieron mucho más allá de lo que esperaban los organizadores.

Newswise: The Epileptic Heart: Seizures, Epilepsy, and Cardiac Risk Factors
Released: 2-Oct-2024 11:05 AM EDT
The Epileptic Heart: Seizures, Epilepsy, and Cardiac Risk Factors
International League Against Epilepsy

Studies suggest that compared with the general population, people with chronic epilepsy have three times the risk of sudden cardiac death. Researchers have introduced the concept of the "epileptic heart" as "a heart and coronary vasculature damaged by chronic epilepsy... leading to electrical and mechanical dysfunction."

Newswise: Two ILAE Regions Collaborate on Successful Webinar Series with Professional Impact
Released: 27-Sep-2024 9:05 AM EDT
Two ILAE Regions Collaborate on Successful Webinar Series with Professional Impact
International League Against Epilepsy

Joint epilepsy educational webinars in English and French, organized by the Africa and Eastern Mediterranean regions of ILAE, had impacts beyond expectations.

Newswise: The Bumpy Road From Pediatric to Adult Epilepsy Care: Dr. Danielle Andrade
Released: 24-Sep-2024 10:05 AM EDT
The Bumpy Road From Pediatric to Adult Epilepsy Care: Dr. Danielle Andrade
International League Against Epilepsy

The shift from pediatric to adult epilepsy care can be complex. A recent survey of young people with epilepsy found that 25% still saw pediatric neurologists for their epilepsy care. Only 4% said they received clear instructions during the transition process.

Released: 24-Sep-2024 8:05 AM EDT
La Neurocisticercosis Como Principal Causa De Epilepsia: Un DiagnóStico ErróNeo Que Debe Evitarse
International League Against Epilepsy

La afirmación de que "la neurocisticercosis (NCC) es una de las causas más comunes de epilepsia en todo el mundo" no solo es incorrecta, sino también potencialmente engañosa para los lectores que no están familiarizados con la epidemiología de la epilepsia.

Newswise: Au volant : Conduire avec l'épilepsie
Released: 19-Sep-2024 3:05 PM EDT
Au volant : Conduire avec l'épilepsie
International League Against Epilepsy

Pour les personnes atteintes d'épilepsie, la capacité de conduire figure parmi leurs principales préoccupations. Les réglementations varient d'un pays à l'autre. Bon nombre d'entre eux ont des restrictions sur la conduite pour les personnes atteintes d'épilepsie, mais certains n'ont pas de politique.

Newswise: Investigating Pediatric Epilepsy in Nigeria: Dr. Edwin Trevathan
Released: 19-Sep-2024 2:05 PM EDT
Investigating Pediatric Epilepsy in Nigeria: Dr. Edwin Trevathan
International League Against Epilepsy

In northern Nigeria, more people need epilepsy treatment than traditional medical care can support. Dr. Edwin Trevathan discusses projects aimed at identifying children with undiagnosed epilepsy and improving access to care, as well as research to better understand the risks and prognosis of pediatric status epilepticus.

Newswise: Transition to adult care in epilepsy: Bridging the gap
Released: 21-Aug-2024 2:05 PM EDT
Transition to adult care in epilepsy: Bridging the gap
International League Against Epilepsy

Once they turn 18, most adolescents with epilepsy must transfer from pediatric to adult care. Factors on both the pediatric and adult sides of the health care system can make this process fragmented and stressful. How can pediatric and adult neurologists ensure that teenagers with epilepsy do not get lost in the system?

Newswise: Consensus recommendations for epilepsy with eyelid myoclonia (Jeavons syndrome): Dr. Kelsey Smith
Released: 21-Aug-2024 1:05 PM EDT
Consensus recommendations for epilepsy with eyelid myoclonia (Jeavons syndrome): Dr. Kelsey Smith
International League Against Epilepsy

A recent publication outlines consensus recommendations on several aspects of managing epilepsy with eyelid myoclonia, also known as Jeavons syndrome. What are the most effective first-line medications? Are there non-pharmacologic treatment options? Can people with this type of epilepsy drive safely? Dr. Alina Ivaniuk talks to the paper’s first author, Dr. Kelsey Smith.

Newswise: Planes de acción para las crisis epilépticas: más que herramientas de tratamiento para la epilepsia
Released: 20-Aug-2024 12:05 PM EDT
Planes de acción para las crisis epilépticas: más que herramientas de tratamiento para la epilepsia
International League Against Epilepsy

Históricamente, los planes de acción contra las convulsiones se han centrado en ciertos grupos de personas con epilepsia de alto riesgo. Pero algunos médicos dicen que los planes de acción para las convulsiones son importantes herramientas educativas y de control de las convulsiones que deben ofrecerse a todos.

Newswise: Éduquer les non-spécialistes au Mexique : un nouveau cours universitaire offre une expérience hybride
Released: 9-Aug-2024 9:05 AM EDT
Éduquer les non-spécialistes au Mexique : un nouveau cours universitaire offre une expérience hybride
International League Against Epilepsy

En raison du manque relatif de neurologues, la plupart des prestataires de soins de santé primaires en Amérique latine sont chargés de fournir des soins aux personnes atteintes d’épilepsie. Néanmoins, comme la plupart des professionnels de la santé primaires dans le monde, ces professionnels n’ont pas une formation suffisante pour gérer l’épilepsie. Un nouveau cursus universitaire vise à résoudre ce problème en formant les prestataires de soins de santé par le biais d’un programme structuré.

Newswise: Investigación y financiación de la epilepsia en países de bajos recursos: cuestiones éticas y pasos hacia la equidad
Released: 1-Aug-2024 1:05 PM EDT
Investigación y financiación de la epilepsia en países de bajos recursos: cuestiones éticas y pasos hacia la equidad
International League Against Epilepsy

Menos del 10% de la financiación de la investigación sobre la epilepsia se destina a la salud en los países de menores recursos, a pesar de que el 80% de las personas con epilepsia viven en estos países. La promoción de la investigación mundial sobre la epilepsia y la mejora de las vías de financiación tienen el potencial de aumentar la capacidad de investigación de los países de ingresos bajos y medianos y promover la equidad en la investigación de la epilepsia en todo el mundo.



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