ILAE spoke with Action Amos about plans and strategies for improving epilepsy care across Africa. Leveraged by the Intersectoral Global Action Plan on epilepsy and other neurological disorders (IGAP), four "trendsetter" countries are taking a variety of approaches to engage governments and ensure the participation of people with epilepsy in all of their initiatives.
El estigma afecta todos los aspectos de la atención de la epilepsia, desde el diagnóstico y el tratamiento hasta la legislación y las asignaciones presupuestarias. Un estudio realizado en los Estados Unidos encontró que un tercio de los participantes informaron que el estigma, no las convulsiones en sí, era la parte más difícil de vivir con epilepsia.
El video ha jugado un papel importante en el cuidado de la epilepsia durante décadas. Ahora, las convulsiones capturadas en el video de un teléfono inteligente pueden acelerar el diagnóstico y el tratamiento, particularmente en áreas con pocos o ningún neurólogo.
Video has played an important role in epilepsy care for decades. Now, seizures captured on smartphone video can speed diagnosis and treatment, particularly in areas with few or no neurologists.
Access to care affects people with epilepsy worldwide. Bringing care closer to home can help—but what about bringing care inside the home?
A 28-year study found increased risks of preeclampsia, gestational diabetes, ICU admission during hospitalization for delivery, postpartum hospitalization, and an increased risk of mortality compared with pregnant women who did not have epilepsy.
El acceso a la atención afecta a las personas con epilepsia en todo el mundo. Acercar la atención al hogar puede ayudar, pero ¿qué tal llevar la atención a la casa?
What special considerations must physicians make when managing epilepsy in older adults? Who is considered an “older adult,” anyway? Dr. Anca Arbune interviews two authors of a recent critical review by an ILAE task force.
La stigmatisation affecte tous les aspects des soins de l’épilepsie, du diagnostic au traitement en passant par la législation et aux allocations budgétaires. Elle affecte la vie des personnes atteintes d’épilepsie lorsqu’elles n’ont pas un accès égal à l’éducation, à l’emploi et aux mêmes droits sociaux.
El Plan de Acción Mundial Intersectorial sobre Epilepsia y Otros Trastornos Neurológicos (IGAP) tiene como objetivo reducir las brechas de diagnóstico y tratamiento de la epilepsia en todo el mundo para 2031. Muchas personas en la comunidad de la epilepsia se preguntan: "¿Cómo hacemos mejorar el acceso a la atención?"
Stigma affects all aspects of epilepsy care. It affects the lives of people with epilepsy when they are not given equal access to education, employment, and social opportunities. In a US study, one-third of respondents identified stigma—not seizures—as the most difficult part of living with epilepsy.
Can bringing epilepsy care to people’s homes improve outcomes? ILAE spoke with two researchers who conducted a randomized trial of home-based care versus clinic-based care in northern India. Those receiving the home-based care, delivered by community health workers, had better outcomes.
Le rôle des soins de santé primaires dans l’identification, le diagnostic et le traitement des personnes atteintes d’épilepsie est de plus en plus important. Cependant, les attitudes sociétales et la stigmatisation entourant l’épilepsie peuvent constituer des obstacles majeurs à l’amélioration des soins.
A pesar de las directrices, el tratamiento de primera línea para el estado epiléptico a menudo es inadecuado. Los estudios sugieren que hasta dos tercios de los pacientes reciben dosis subclínicas de benzodiazepinas, ya sea antes de llegar a un hospital o durante el tratamiento hospitalario de emergencia. ¿Hay soluciones?
When the full-scale war in Ukraine began, anti-seizure medication supplies disappeared and some families left the country for safety. How has the past year affected people with epilepsy in Ukraine and their families, as well as the physicians who care for them?
In some countries, more than 90% of people with epilepsy are not receiving treatment. Over the past two decades, epilepsy diagnosis and treatment have evolved in China as the country has focused on multiple aspects of care, including stigma and access to specialists.
Stigma leads to discrimination and can affect all aspects of a person’s life. Dr. Bruna Nucera talked with Mary Secco from the International Bureau for Epilepsy (IBE) about addressing stigma through listening to people with epilepsy and their lived experiences.
Jessie Nyirenda's seizures began in her early teens. She was dismissed as attention-seeking and told she might be cursed. Years later, Jessie discovered information about her condition through library research and was formally diagnosed. She now works as a financial educator and is a mother of three children.
Bidirectional links between epilepsy and sleep have been known for thousands of years. Despite nearly a century of research using EEG investigations, the relationships are still not well understood.
El ejercicio ayudó al estudiante universitario Vinay Jani de Delhi, India, a ganar fuerza y perder peso. Pero en 2005, comenzó a tener crisis epilépticas. El control de las crisis epilépticas era difícil de alcanzar, y Jani entró en una depresión. Dejó de hacer ejercicio y recuperó más de la mitad del peso que había perdido.
The International League Against Epilepsy (ILAE) and the International Bureau for Epilepsy (IBE) are calling for greater understanding and intersectoral action to tackle the stigma and discrimination faced by people with epilepsy worldwide.
He is one of the best known researchers in the behavioral aspects of epilepsy, and has authored more than 250 papers and book chapters. Dr. Kanner sat down with ILAE to talk about his original goal of becoming an artist, his path to epileptology, and what has shaped him into an excellent clinician.
Malgré les recommandations, le traitement de première intention de l'état de mal épileptique est souvent inapproprié. Des études suggèrent que jusqu'à deux tiers des patients reçoivent des doses subcliniques de benzodiazépines, soit avant d'arriver à l'hôpital, soit pendant un traitement hospitalier d'urgence. Existe-t-il des solutions ?
Other than in rare cases, physical activity does not increase the risk for seizures in people with epilepsy. But people with epilepsy are less active than the general population and have poorer objective physical fitness than the general population. How can we change that?
Un equipo de investigadores visito dos centros de atencion primaria de salud en Bhimaravam para evaluar la atencion proporcionada a las personas con epilepsia a traves del sistema de atencion primaria de salud.
In this episode of Sharp Waves, the ILAE podcast, Dr. Maryam Nabavi Nouri talks with Dr. Konrad Wagstyl about the MELD Project, an open-science consortium using deep learning principles to develop automated lesion detection of clinical MRI data.
Dr. Alina Ivaniuk talks with Dr. Neuray about her career path from medical school to industry CEO. They discuss the power of peer mentoring, ways to improve medical education, and finding the courage to accept change.
First-line immunotherapy and the ketogenic diet are two main recommendations for treatment of NORSE of unknown cause, according to results from an international consensus group. Dr. Maryam Nabavi Nouri interviews first author Dr. Ronny Wickstrom.
Hours from the nearest city in India, down a pothole-studded road framed by fish farms, primary care centers in Andra Pradesh provide service to tens of thousands of people. How do these centers care for people with epilepsy, and what challenges do they face?
Nurses play crucial roles in epilepsy care, but their perspectives and voices are often missing. The ILAE Nursing Section is a “home” for nurses around the world who care for people with epilepsy. Sharp Waves talked to section leaders.
À l’automne 2021, la section des soins infirmiers de l’ILAE a été créée pour créer un « foyer » pour les infirmières du monde entier qui s’occupent de personnes atteintes d’épilepsie.
En el otoño de 2021, se formó la Sección de Enfermería de ILAE para crear un "hogar" para las enfermeras de todo el mundo que atienden a personas con epilepsia.
A benzodiazepine is the first-line treatment of choice for status epilepticus. Despite guidelines from 2012 and 2016 thta recommend medication types, doses, and means of administration, benzodiazepines are often underdosed, or not given at all.
Nurses who care for people with epilepsy fulfill dozens of roles, helping people to navigate clinical, educational, emotional, and social dimensions of epilepsy. But the depth, breadth, and impact of these roles is not always recognized.
Los neurólogos de todo el mundo tienen preocupaciones sobre el uso de medicamentos genéricos anticrisis, cuestionando la calidad deficiente o inconsistente, el acceso limitado, el costo y la falta de control regulatorio.
La mayor parte de las investigaciones sobre el estado epiléptico se ha realizado en países de altos recursos. Es probable que los países de bajos recursos mantengan una incidencia más alta de estados epilépticos, debido a las mayores brechas en el tratamiento de la epilepsia.
Until recently, no international organization existed to unite the millions of nurses who care for people with epilepsy. Now, the ILAE Nursing Section is addressing issues of education, value, and responsibilities, with the goal of improving epilepsy care worldwide.
A recent study reported data from more than 1,300 infants whose mothers are enrolled in the Kerala Registry of Epilepsy in Pregnancy. Babies were evaluated for mental and motor development at 1 year of age.
Alzheimer's disease is a risk factor for epilepsy - and epilepsy is a risk factor for Alzheimer's. We spoke with Dr. Andrew Cole and Dr. Alice Lam about the latest research and some intriguing findings that suggest links between these two conditions.
From medical training during a civil war to starting Kentucky's first epilepsy fellowship program, Dr. Meriem Bensalem-Owen talks with Sharp Waves about her career journey.
What is autoimmune-associated epilepsy, and how is it different from acute seizures with an autoimmune cause? How can clinicians best diagnose and treat these conditions? Sharp Waves reporter Dr. Maryam Nabavi-Nouri spoke with Dr. Claude Steriade.
SNOMED International and the International League Against Epilepsy (ILAE) have signed a five-year agreement that will contribute to global improvements in care and services for people with epilepsy.
Does COVID-19 infection affect people with epilepsy differently? Are people with epilepsy less likely to get vaccinated? A session at the European Epilepsy Congress in July 2022 covered these topics, and more.
On Tuesday Sept. 7, 2022, a federal judge in Texas ruled that the Affordable Care Act's US Preventive Services Task Force (USPSTF) violates the U.S. Constitution's Delegations Clause and is unconstitutional. Under the Affordable Care Act, preventive services that receive an A or B grade rating from the USPSTF must be offered by health insurance providers – at no cost to patients. This ruling jeopardizes the availability and affordability of a wide range of preventive health services currently enjoyed by millions of Americans.
Partnering with the Polish university is just one example of TTUHSC El Paso's global outreach. In 2017, the university partnered with the University of Medicine and Pharmacy at Ho Chi Minh and Pham Ngoc Thach University of Medicine to advance medical training and education in Vietnam. This year, Sanja Kupesic, M.D., Ph.D., associate academic dean for Faculty Development, began developing the Collaborative International Faculty Development Program with the Faculty of Medicine at the University of Rijeka in Croatia.
Wiley and ILAE launched the Epilepsy Knowledge Hub to provide health care professionals with the latest research and guidelines to aid in diagnosis, classification, and treatment for people with epilepsy syndromes.
As anyone who’s crossed Texas on Interstate 10 can tell you, the Lone Star State is where east meets west.
We spoke with two authors of a study that attempted to tally all the cases of newly diagnosed epilepsy and first seizures during a single year in County Cork, Ireland. They wanted to know: In this relatively homogenous county, were there higher rates of epilepsy in more socially deprived neighborhoods?
A proposed School of Behavioral Health Sciences at UTHealth Houston would create an unprecedented pipeline for health care workers in mental health specialties to provide critical services for Texans.
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