Newswise — Washington, DC (October 2, 2024) — Chronic kidney disease is a progressive condition that affects more than 10% of the general population worldwide, amounting to 800 million individuals. Glomerular diseases (GD), excluding diabetic nephropathy, account for approximately 25% of the cases of kidney diseases worldwide. Given the magnitude of long-term morbidity from GD— particularly the frequent manifestation in younger patients—diagnosing it efficiently and optimizing management to control diseases and prevent progressive kidney diseases is paramount.
The American Society of Nephrology (ASN) Glomerular Diseases Collaborative (GD-C) initiative is to promote high-quality care for people with glomerular diseases and stimulate opportunities to address gaps in knowledge, training, continuing education, and awareness across the spectrum of glomerular diseases.
Most forms of GD develop gradually, often causing no symptoms for many years. GD pathogenesis varies and is believed to be the result of autoimmune, genetic, epigenetic, infectious, and paraneoplastic factors, as well as exposure to medications and environmental influences.
In 2023, ASN formed a strategic advisory panel of GD experts across the United States. The ASN GD-C Strategic Advisory Panel explored, analyzed, and evaluated the diagnosis and treatment landscape for GD. The panel identified numerous tactical opportunities to address the gaps in GD care, research, and education.
The ASN GD-C Steering Committee will further define the scope of the initiative, building from the strategic framework identified by the strategic advisory panel. “We want this group to be driven by the mission of making sure that all people with glomerular disease, regardless if you are a farmer living in the rural mid-west, a professor living in a large metropolitan city or a child, your access to the best care and treatment is the same”, said Keisha Gibson, MD, MPH, FASN, Chair of the GD-C initiative.
The Steering Committee will prioritize and design interventions to:
- improve early identification of persons with glomerular diseases to facilitate earlier treatment.
- expand clinical knowledge for improved recognition of GD and management.
- advocate for improved access to GD specialists and clinical trials as a treatment pathway.
- promote equal, optimal access to the best treatments for all people with glomerular diseases.
References:
- Kovesdy CP. Epidemiology of chronic kidney disease: an update 2022. Kidney Int Suppl (2011). Apr 2022;12(1):7-11. doi:10.1016/j.kisu.2021.11.003
- Kidney Disease: Improving Global Outcomes Glomerular Diseases Work G. KDIGO 2021 Clinical Practice Guideline for the Management of Glomerular Diseases. Kidney Int. Oct 2021;100(4S):S1-S276. doi:10.1016/j.kint.2021.05.021
- Ingelfinger JR, Kalantar-Zadeh K, Schaefer F. World Kidney Day 2016: Averting the Legacy of Kidney Disease--Focus on Childhood. Am J Kidney Dis. Mar 2016;67(3):349-354. doi:10.1053/j.ajkd.2015.12.011
Support for the Glomerular Diseases Collaborative is provided by Amgen, Otsuka, Travere Therapeutics, Inc., and Vera Therapeutics, Inc.
About ASN
Since 1966, ASN has been leading the fight to prevent, treat, and cure kidney diseases throughout the world by educating health professionals and scientists, advancing research and innovation, communicating new knowledge and advocating for the highest quality care for patients. ASN has nearly 22,000 members representing 141 countries. For more information, visit www.asn-online.org and follow us on Facebook, X, LinkedIn, and Instagram.
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