What special considerations must physicians make when managing epilepsy in older adults? Who is considered an “older adult,” anyway? Dr. Anca Arbune interviews two authors of a recent critical review by an ILAE task force.
La stigmatisation affecte tous les aspects des soins de l’épilepsie, du diagnostic au traitement en passant par la législation et aux allocations budgétaires. Elle affecte la vie des personnes atteintes d’épilepsie lorsqu’elles n’ont pas un accès égal à l’éducation, à l’emploi et aux mêmes droits sociaux.
El Plan de Acción Mundial Intersectorial sobre Epilepsia y Otros Trastornos Neurológicos (IGAP) tiene como objetivo reducir las brechas de diagnóstico y tratamiento de la epilepsia en todo el mundo para 2031. Muchas personas en la comunidad de la epilepsia se preguntan: "¿Cómo hacemos mejorar el acceso a la atención?"
Stigma affects all aspects of epilepsy care. It affects the lives of people with epilepsy when they are not given equal access to education, employment, and social opportunities. In a US study, one-third of respondents identified stigma—not seizures—as the most difficult part of living with epilepsy.
Can bringing epilepsy care to people’s homes improve outcomes? ILAE spoke with two researchers who conducted a randomized trial of home-based care versus clinic-based care in northern India. Those receiving the home-based care, delivered by community health workers, had better outcomes.
Le rôle des soins de santé primaires dans l’identification, le diagnostic et le traitement des personnes atteintes d’épilepsie est de plus en plus important. Cependant, les attitudes sociétales et la stigmatisation entourant l’épilepsie peuvent constituer des obstacles majeurs à l’amélioration des soins.
A pesar de las directrices, el tratamiento de primera línea para el estado epiléptico a menudo es inadecuado. Los estudios sugieren que hasta dos tercios de los pacientes reciben dosis subclínicas de benzodiazepinas, ya sea antes de llegar a un hospital o durante el tratamiento hospitalario de emergencia. ¿Hay soluciones?
When the full-scale war in Ukraine began, anti-seizure medication supplies disappeared and some families left the country for safety. How has the past year affected people with epilepsy in Ukraine and their families, as well as the physicians who care for them?
In some countries, more than 90% of people with epilepsy are not receiving treatment. Over the past two decades, epilepsy diagnosis and treatment have evolved in China as the country has focused on multiple aspects of care, including stigma and access to specialists.
Stigma leads to discrimination and can affect all aspects of a person’s life. Dr. Bruna Nucera talked with Mary Secco from the International Bureau for Epilepsy (IBE) about addressing stigma through listening to people with epilepsy and their lived experiences.
Jessie Nyirenda's seizures began in her early teens. She was dismissed as attention-seeking and told she might be cursed. Years later, Jessie discovered information about her condition through library research and was formally diagnosed. She now works as a financial educator and is a mother of three children.
Bidirectional links between epilepsy and sleep have been known for thousands of years. Despite nearly a century of research using EEG investigations, the relationships are still not well understood.
El ejercicio ayudó al estudiante universitario Vinay Jani de Delhi, India, a ganar fuerza y perder peso. Pero en 2005, comenzó a tener crisis epilépticas. El control de las crisis epilépticas era difícil de alcanzar, y Jani entró en una depresión. Dejó de hacer ejercicio y recuperó más de la mitad del peso que había perdido.
The International League Against Epilepsy (ILAE) and the International Bureau for Epilepsy (IBE) are calling for greater understanding and intersectoral action to tackle the stigma and discrimination faced by people with epilepsy worldwide.
He is one of the best known researchers in the behavioral aspects of epilepsy, and has authored more than 250 papers and book chapters. Dr. Kanner sat down with ILAE to talk about his original goal of becoming an artist, his path to epileptology, and what has shaped him into an excellent clinician.
Malgré les recommandations, le traitement de première intention de l'état de mal épileptique est souvent inapproprié. Des études suggèrent que jusqu'à deux tiers des patients reçoivent des doses subcliniques de benzodiazépines, soit avant d'arriver à l'hôpital, soit pendant un traitement hospitalier d'urgence. Existe-t-il des solutions ?
Other than in rare cases, physical activity does not increase the risk for seizures in people with epilepsy. But people with epilepsy are less active than the general population and have poorer objective physical fitness than the general population. How can we change that?
Un equipo de investigadores visito dos centros de atencion primaria de salud en Bhimaravam para evaluar la atencion proporcionada a las personas con epilepsia a traves del sistema de atencion primaria de salud.
In this episode of Sharp Waves, the ILAE podcast, Dr. Maryam Nabavi Nouri talks with Dr. Konrad Wagstyl about the MELD Project, an open-science consortium using deep learning principles to develop automated lesion detection of clinical MRI data.
Dr. Alina Ivaniuk talks with Dr. Neuray about her career path from medical school to industry CEO. They discuss the power of peer mentoring, ways to improve medical education, and finding the courage to accept change.
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